User talk:RareDiseasesNet

Managing a conflict of interest

Hello, RareDiseasesNet. We welcome your contributions, but if you have an external relationship with the people, places or things you have written about on Wikipedia, you may have a conflict of interest (COI). Editors with a conflict of interest may be unduly influenced by their connection to the topic. See the conflict of interest guideline and FAQ for article subjects for more information. We ask that you:

• avoid editing or creating articles about yourself, your family, friends, colleagues, company, organization, clients, or competitors;
• propose changes on the talk pages of affected articles (you can use the {{edit COI}} template)—don't forget to give details of reliable sources supporting your suggestions;
• disclose your conflict of interest when discussing affected articles (see Wikipedia:Conflict of interest § How to disclose a COI);
• avoid linking to your organization's website in other articles (see Wikipedia:Spam § External link spamming);
• do your best to comply with Wikipedia's content policies.

In addition, you are required by the Wikimedia Foundation's terms of use to disclose your employer, client, and affiliation with respect to any contribution which forms all or part of work for which you receive, or expect to receive, compensation. See Wikipedia:Paid-contribution disclosure.

Also, editing for the purpose of advertising, publicizing, or promoting anyone or anything is not permitted. Thank you. MrOllie (talk) 16:01, 17 September 2024 (UTC)

September 2024

Your account has been indefinitely blocked from editing because it has been used for advertising or promotion, which is contrary to the purpose of Wikipedia. Also, your username gives the impression that the account represents a business, organisation, group, or web site, which is against the username policy.

If you intend to make useful contributions instead of promoting your business or organization, you may request unblock and a username change. In your reasons, you must follow all these steps:

1. Disclose any compensation you may receive for your contributions in accordance with the paid-contribution disclosure requirement; and
2. Convince us that you understand the reason for your block and that you will not repeat the kind of edits for which you were blocked; and
3. Describe in general terms the contributions that you intend to make if you are unblocked; and
4. Provide a new username.

To do this, insert the text {{unblock-spamun|Your proposed new username|Your reason here}} at the bottom of your talk page. Replace the text "Your proposed new username" with your new username and replace the text "Your reason here" with your reasons to be unblocked.

Please note that the new username you choose cannot already be taken and in use by another account. You can search to see if the username you'd like to choose is available. If the search returns that no global account with that username exists, that means it is still available.

Appeals: If, after reviewing the guide to appealing blocks, you believe this block was made in error, you may appeal it by adding the text {{unblock|reason=Your reason here ~~~~}} at the bottom of your talk page. Replace the text "Your reason here" with the reasons you believe the block was an error, and publish the page. Secretlondon (talk) 17:04, 17 September 2024 (UTC)

unblock request

This user's request to be unblocked to request a change in username has been reviewed by an administrator, who declined the request. Other administrators may also review this block, but should not override the decision without a good reason (see the blocking policy). Do not remove this unblock review while you are blocked.

RareDiseasesNet (block log • active blocks • global blocks • autoblocks • contribs • deleted contribs • filter log • creation log • change block settings • unblock • checkuser (log))

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Requested username:

keborall (talk · contribs · deleted contribs · logs · filter log · block user · block log)

Request reason:

1.I do not receive compensation for my contributions to Wikipedia. I do work for the Rare Diseases Research Clinical Network whose mission is to advocate for individuals and their families diagnosed with a rare diseases providing them resources they may not be aware of. 2.My posts were blocked because they were unintentionally written as a promotional block. 3.I would like to add information to numerous rare diseases to provide readers with more help. Most people searching for a rare disease are either the person diagnosed with said disease or someone who cares or loves them. I would like to add an external link to the research group studying a rare disease to provide helpful information. Here is an example: for ALS ALS - Wikipedia there is a research group that holds clinical trials, provides links to clinical sites that specialize in this treatment, and who provide podcasts on possible treatments to help individuals -https://create.rarediseasesnetwork.org/ I propose adding just a link to the corresponding research network studying a particular disease- the link would be placed at the bottom of the Wikipedia page under “External Links”. Here is an example where a similar link already exists on a Wikipedia page: Primary ciliary dyskinesia - Wikipedia RareDiseasesNet (talk) 12:33, 23 September 2024 (UTC)

Decline reason:

If you work for the Rare Diseases Research Clinical Network, you are a paid editor, it does not require specific payment for edits(otherwise every paid editor would deny being specifically paid to make edits). You absolutely need to make the Terms of Use-required paid editing disclosure. You have a severe conflict of interest in making edits related to your organization and your purpose in being here seems to be to promote your website and its information here. You may have good reasons for doing that, but it is still promotion nevertheless, a purpose that is incompatible with Wikipedia. (its possible that the link you cite shouldn't be there, either, see other stuff exists) If you want to make nonpromotional edits about topics for which you have no conflict of interest, please tell what those might be. I am declining your request. 331dot (talk) 13:27, 23 September 2024 (UTC)