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Bite Me Cancer Foundation

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The Bite Me Cancer Foundation is a nonprofit 501(c) organization, founded in Fairfax County, Virginia, in September 2010 by Nikki Ferraro and her parents, Sharon Ferraro and C. Michael Ferraro. Bite Me Cancer was founded with the goal to support teenagers with all types of cancer, in addition to providing direct funding to research and improve awareness and advocacy for thyroid cancer. Bite Me Cancer partners with the American Thyroid Association to raise awareness and fund grants across the world. Bite Me Cancer seeks to both support teenagers with all types of cancer and directly fund for thyroid cancer research.

History

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At the age of 17, Nikki Ferraro was diagnosed with sporadic medullary thyroid cancer, a rare form of thyroid carcinoma, in April 2010 as a junior at Chantilly High School, Chantilly, Virginia. Immediately following her diagnosis, she organized a Relay for Life team in support of her diagnosis, and two months later finished as the #1 individual fundraiser in South Atlantic Region of the American Cancer Society after raising over $20,000. Nikki was driven to take the support she received from the Relay experience and turn it into a widespread campaign to help others dealing with cancer. Three months later, in September 2010, Bite Me Cancer was incorporated into a foundation.

Two months after the formation of Bite Me Cancer, Nicole Ferraro received the 2010 Leadership Fairfax Non-Profit Educational Leadership Award.[1] The following year, she received the first-ever Perlita Liwanag Scholarship from the Ulman Cancer Fund for Young Adults at Chantilly High School.[2] Bite Me Cancer focuses on supporting teens undergoing cancer treatment, in addition to supporting the progression of thyroid cancer research and treatment development.[3]

Bite Me Cancer, with Nikki’s leadership, developed its Teen Support Bag and handed out the first one in 2012. It was and still is important that the items are chosen specifically for teen cancer patients. Teenagers dealing with cancer fall through the cracks between the younger pediatric patients and adult patients. They need much support as they face unique challenges.

When Nikki was diagnosed, thyroid cancer was the fastest increasing cancer in the US with very few treatment options. In her case, surgery was the only available treatment. Directly funding research grants became a high priority for Bite Me Cancer.

Teen Cancer Awareness Week

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On July 31, 2014, Virginia Governor Terry McAuliffe declared the third week of January, starting in 2015, Teen Cancer Awareness Week in the Commonwealth of Virginia,[4] thanks to the hard work and determination of Ferraro and the Bite Me Cancer Foundation. McAuliffe stated in his declaration that "the health and safety of all Virginians is essential to the happiness and well-being of the Commonwealth’s families and communities, whereas cancer is the leading cause of death in the adolescent population, and whereas the survival rates for adolescent cancer have not improved in the last thirty years." The Fairfax County Board of Supervisors provided a proclamation for Teen Cancer Awareness Week in January 2015, and Bite Me Cancer officially announced on January 4, 2015, that the awareness week would begin the same year.[5] In his declaration, Governor McAuliffe also highlighted the fact that many teens battling cancer are "isolated from their friends and family," and noted the importance of "vigorously" supporting them as they return to everyday social and academic settings.[6] Bite Me Cancer continues to raise awareness in schools and homes with this annual event.

Thyroid cancer

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Ferraro explains that many people refer to thyroid cancer as the "good cancer" due to the perception that there is not a high rate of mortality, its history of being diagnosed in a smaller group of people and that losing the thyroid is not a difficult situation.[7] However, thyroid cancer is dangerous and can be aggressive. Medullary thyroid cancer is rare, accounting for 3–4% of all thyroid cancer diagnoses. Currently, medullary thyroid cancer is noncurative, meaning that those diagnosed with this form of thyroid carcinoma will likely battle it for the rest of their lives. Less than a handful of drugs have been approved for medullary thyroid cancer treatment.[8]

Research

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Bite Me Cancer has funded seven research grants for thyroid cancer in the past and is working toward funding another during 2021. The first grant, totaling $57,500, was awarded in 2014 to Ramona Dadu, MD at the MD Anderson Cancer Center in Houston, Texas. The two-year research project, titled "Immune Markers in Medullary Thyroid Cancer (MTC) and Their Clinical Significance",[9] and began in July 2014. Dadu is an assistant professor at Anderson Cancer Center in the Department of Endocrine Neoplasia & Hormonal Disorders.[10] Dadu also received the Women in Endocrinology Young Investigator Award and the American Thyroid Association Grant for her research in 2014. Dadu's research "will work with experts in the field of immunotherapy to uncover new information of prognosis and how medications interact with the cancer".[11] "The ultimate goal is to see that many patients will benefit from this approach."[12]

Fundraising

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Bite Me Cancer organizes annual events, including an annual wine dinner (2014–present) every year to honor and celebrate with cancer survivors including Nikki Ferraro, who was diagnosed in April 2010. The focus on onsite donations during the dinner is to support our Teen Support Bag program. There are currently few programs in place to support teenagers with cancer, but there are thousands of programs to support young children and adults. Teenagers with cancers often require specific treatment and support, and there is very little awareness of the struggles that teenagers with cancer face. By developing and shipping the Teen Support Bags to hospitals around the country for their teenagers battling cancer and holding events to raise awareness, Bite Me Cancer is participating in a movement to increase support and make more resources available to these special teenagers.[13]

Teen Support Bags

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As of June 2021, Bite Me Cancer has passed out 8,600 Teen Support Bags across the country to teens with cancer through a growing network of hospitals that enable teenagers in every state and DC to receive the bags. Currently, about 150 hospitals are part of the network. The foundation coordinates the stuffing and distribution of the Teen Support Bags every year with groups of volunteers. Each bag includes items to eliminate stress, inspire and support teenagers currently undergoing cancer treatment. Nikki Ferraro tries to hand-deliver the bags to teens, offering advice and encouragement during their treatments.[14]

References

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  1. ^ Rust, LeMunyon and Plum (January 12, 2011). "House Joint Resolution No. 670". Virginia House of Delegates. Archived from the original on April 2, 2015. Retrieved February 24, 2015.
  2. ^ "Perlita Liwanag Memorial Scholarship". Ulman Fund. Ulman Fund. 2013. Archived from the original on May 16, 2014. Retrieved February 24, 2015.
  3. ^ "Bite Me Cancer – About". Bite Me Cancer. Archived from the original on February 19, 2015. Retrieved February 20, 2015.
  4. ^ McAuliffe, Terry (2015). "Teen Cancer Awareness Month". Virginia Governor's Office. Virginia Governor's Office. Retrieved February 24, 2015.[permanent dead link‍]
  5. ^ "Board of Supervisors Meeting". Jan. 13, 2015 Board of Supervisors Meeting. Fairfax County, Virginia. January 13, 2015. Archived from the original on February 23, 2015. Retrieved Feb 20, 2015.
  6. ^ "Proclamation – Teen Cancer Awareness Month". Virginia Governor's Office. January 13, 2015. Retrieved February 25, 2015.[permanent dead link‍]
  7. ^ Ferraro, Nicole (Jan 27, 2013). "Thyroid Cancer: NOT The Good Cancer". YouTube. BiteMeCancerOrg. Archived from the original on July 26, 2024. Retrieved Feb 27, 2015.
  8. ^ "Immune Markers in Medullary Thyroid Cancer (MTC) and Their Clinical Significance Preliminary Results" (PDF). MD Anderson Cancer Center. 2014. Archived from the original (PDF) on 2014-02-17. Retrieved Feb 24, 2015.
  9. ^ "The American Thyroid Association Recognizes Research Grant Collaboration of Patient Support Groups Bite Me Cancer and ThyCa Thyroid Cancer Survivors Association Inc". American Thyroid Association. July 22, 2014. Archived from the original on July 26, 2024. Retrieved February 20, 2015.
  10. ^ "Thyroid Cancer". American Cancer Society. Retrieved February 20, 2015.
  11. ^ "Dr Dadu from MD Anderson and Bite Me Cancer's Research Grant Investment". YouTube. BiteMeCancerOrg. Jan 2, 2015. Archived from the original on March 9, 2016. Retrieved Feb 20, 2015.
  12. ^ "Dr Dadu from MD Anderson and Bite Me Cancer's Research Grant Investment". YouTube. BiteMeCancerOrg. Jan 2, 2015. Archived from the original on March 9, 2016. Retrieved Feb 20, 2015.
  13. ^ "Events". Bite Me Cancer. Archived from the original on February 19, 2015. Retrieved March 1, 2015.
  14. ^ "BMC Teen Support". Bite Me Cancer. Bite Me Cancer. 2011. Archived from the original on March 20, 2015. Retrieved March 5, 2015.
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